Meta-discourses of disability among people with Multiple Sclerosis
DOI:
https://doi.org/10.25071/2564-2855.3Keywords:
discourse analysis, disability, online forumsAbstract
This study qualitatively analyzes meta-discourses surrounding the term disabled by people with Multiple Sclerosis (MS) on the Reddit sub-community r/MultipleSclerosis. It explores medical and social factors influencing whether people with MS identify as disabled, resist the term, or identify in other ways, and discusses how people with MS are reclaiming the discourse of disability. MS, an auto-immune disease targeting the central nervous system, is unique in that it can be “invisible”: it does not always affect the person who has it in noticeable ways. Consequently, the progression of the illness is only one factor cited when users discuss how they identify with the term disabled—social and logistical factors have an influence as well. Therefore, I suggest that instead of prescribing a term to refer to people with disabilities, it may be better to accept the many ways in which individuals with disabilities refer to themselves.
References
Barnes, C. & Mercer, G. (1997). Breaking the mould? An introduction to doing disability research. In Barnes, C., & Mercer, G. (Eds.). Doing disability research (pp. 1–14). Disability Press.
Bolt, D. (2003). Blindness and the problems of terminology. Journal of Visual Impairment and Blindness, 97(9), 519-520. https://doi.org/10.1177/0145482X0309700903 DOI: https://doi.org/10.1177/0145482X0309700903
Cameron, D. (2012). Verbal hygiene. Routledge. DOI: https://doi.org/10.4324/9780203123898
Corker, M., & French, S. (1999). Disability discourse. Open University Press.
Ehrlich, S., & King, R. (1994). Feminist meanings and the (de)politicization of the lexicon. Language in Society, 23(1), 59–76. DOI: https://doi.org/10.1017/S004740450001767X
Grue, J. (2009). Critical discourse analysis, topoi and mystification: Disability policy documents from a Norwegian NGO. Discourse Studies, 11(3), 305–328. https://doi.org/10.1177/1461445609102446 DOI: https://doi.org/10.1177/1461445609102446
Grue, J. (2016). Disability and discourse analysis. Routledge. DOI: https://doi.org/10.4324/9781315577302
Multiple Sclerosis Society of Canada. (2018). Multiple sclerosis society of Canada. Retrieved June 14, 2018, from https://mssociety.ca/about-ms/what-is-ms
Oliver, M. (1996). Defining impairment and disability: Issues at stake. In Barnes, C., & Mercer, G. (Eds.). Exploring the divide: Illness and disability (pp. 29–54). Disability Press.
Shakespeare, T. (2000). Helpless. In Help (pp. 1–20). British Association of Social Workers.
Shakespeare, T. (2018) Disability: The basics. Routledge. DOI: https://doi.org/10.4324/9781315624839
Stamou, A. G., Alevriadou, A., & Soufla, F. (2016). Representations of disability from the perspective of people with disabilities and their families: A critical discourse analysis of disability groups on Facebook. Scandinavian Journal of Disability Research, 18(1), 1–16. https://doi.org/10.1080/15017419.2014.962611 DOI: https://doi.org/10.1080/15017419.2014.962611
Williams, G. (1996). Representing disability: Some questions of phenomenology and politics. In Barnes, C., & Mercer, G. (Eds.). Exploring the divide: Illness and disability (pp. 194–212). Disability Press.
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